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AVRF Board Members, Roxanne Knight and Marilyn Giordano, with Alida
De Passe (ASNPV, Italy), at Reston, VA for the 19th International Pigment
Cell Conference and Satellite Symposium on Vitiligo. Satellite Meeting:
Burden of disease/interaction with patient's support groups, Sept. 23,
2005 organized by Alida De Pase.
On September 23rd Alida DePease invited
the AVRF to Reston, Virginia to attend the "Satellite Symposium on Vitiligo" as
representation of a vitiligo patient advisory group. AVRF celebrates
our 10th Anniversary this year and we had a lot of accomplishments/goals
to share with the physicians and researchers that were in attendance. We
covered milestones of the past 10 years and spoke volumes with our pictures
and testimonials of children and vitiligo patients that have been impacted
through the years because of our foundation. Everyone knew we appreciated
their interest and support and we pledged our commitment to continue
with our mission. I found the response from the brilliant doctors in
attendance to be heart-warming at the very least.
After the symposium, I traveled on to Washington DC to go see some relatives
as well as take in the new WWII memorial among other sites. It was the weekend
of many organized protests in the capital and I couldn't help but feeling a
huge sense of patriotism at what a great nation we have and diversity at every
corner; much like the AVRF's mission to celebrate diversity. We, the
patient advisory organizations, (much like democrats and republicans), may
not always agree on the methodology, but we are all moving our cause forward
by taking action.
By Roxanne
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