Summary of AVRF 2013 Conference

The 2013 AVRF Conference Recap and Thoughts of the Attendees

Karen Isabella and I, Karen, came from California to attend the conference for the second time.  As is was last year, the conference was an amazing experience for both of us.  Meeting other children with vitiligo has helped me, as a parent, better understand my daughters experience with vitiligo.  She is a beautiful girl who has always been comfortable in her own skin (with or without the spots!).  It never occured to me the she had been fielding stares and questions from her peers until she was able to articulate this to me after the  1st conference.  It made me realize that I had probably not given her enought support and tools around dealing with her peers.  I am so incredibly appreciative of AVRF and Stella and the message of acceptance and respect that it provides.  Isabella has made some wonderful friends (so have I) and I suspect that some of these friendships will last a lifetime.  My nephew, Alex, aslo has Vitiligo and came to ther conference (his 3rd year).  Alex is 15

From Elaine (grandma):  As a grandparent of two wonderful children (cousins) with vitiligo, it has been my joy to attend 3 AVRF conferences.   The first,was with my daughter Kelly and her son Alex, now 15.  The 2nd and 3rd were with my daughter Karen, her daughter Isabella, now 10, and Alex.  The best part for me was watching the children play and have fun with their peers with Vitiligo.  Stella has provided us all with this opportunity and I will be forever grateful for her love and support.

I am Isabella from California and I am 10 years old.  My favorite part of the AVRF conference is the whole thing.  I liked hanging out with my friends, hanging out at the hotel and going places.  I liked meeting other kids with vitiligo because they understand what it means and don't ask a lot of questions.

Andrea, LaGrange IL -  "Meeting new parents who share the same feelings and concerns that I do, really made me feel as if though I wasn't alone.  I really got a lot out of listening to the speakers and knowing that my daughter was out having fun with other kids like her made it such a special weekend - wish it could've been longer."

Francesca, (10) LaGrange, IL -" It was nice to see other girls with vitiligo.  I can't wait for next year, I really want to come back again, it was a lot of fun!"

My daughter Makayla (age 9) and I attended this past August 2013 vitiligo conference and this was so eye opening and inspiring. Makayla seen no one that was different from her and that was a great feeling. She made lifelong friends bonded by Vitiligo.
Bobbie Lynn
Rhode Island

The conference was an awesome experience and a major step forward for me. This is the first time I actually got to meet and become friends with kids that have the same challenges. Thank you AVRF for this opportunity! Victoria

We are very pleased to be connected with an organization like AVRF that brings smiles and education all year round. We especially thank Stella for her unwavering commitment to the children with vitiligo!
Alphonso & April (parents of Victoria) PA

Hello Stella!!
Just want to thank you again for all you do for our kids!!  Ava had such a memorable experience that will last until we see you again next year!

Wishing you the Best
Colleen & Ava PA

Hi Stella... It's Staci, Kamden's mom. My husband Ken is so amazed by you and so happy that he came to be part of the conference this year with Kamden!  He has already said that we should make sure and attend each year. I will look forward to meeting you next year God willing. We hope to be of assistance to you in the future. We know you do a lot for this cause and I personally am very grateful!! 
Staci GA

This was our first conference.  The speakers were excellent, especially Dr. Karin Schallreuter.  I learned more about vitiligo and what options we may have to treat it.  It was great to meet other parents and to hear their stories. I think we all learned a little from each other.  Stella did a super job organizing and making everyone feel comfortable and welcome.  My daughter spent the entire time making new friends - friends with vitiligo - it was a great weekend!  
Deb, Vermont  Emmy’s Mom

I really enjoyed the conference.  I was a little nervous because it was our first conference and I didn't know what to expect.  Everyone made me feel very comfortable. I liked meeting other kids with Vitiligo and hanging out with them. The speaker, Scott Jorgensen was amazing.  I can't wait to go back next year.  
Emmy, Vermont  age 13

UFC fighter Scott Jorgensen joins AVRF kids for 2013 Conference.